Thanks for your continued support - I really appreciate it. I haven't been on for a while because I thought I was spending too much time telling you all my woes. I must confess that I was put on Humira so quickly compared to other people, I thought it would be my miracle drug and feel rather deflated now. I know I shouldn't have done this but I couldn't help it. It seemed it would be the answer to all my problems.
I'm really struggling at the moment. I am loving my new job but the fatigue is really getting to me now. I feel much better mentally but have ended up managing 2 teams now and we are only just setting up with the usual trials of this sort of thing. I'm using all my energy at work then am completely wiped out when I get home. I'm so tired I've felt physically sick all week. I feel a bit tearful today but at least the weekend is just around the corner.
I am definitely going to try for the lunch in Warwick. We are just trying to decide whether to book the hotel or not as we are going to Dubai in April and have to check funds! I actually said to Julian that I would come on my own and he says that he would like to come for lunch with Jim. I'm abit shocked really as he 'doesn't do illness' and thinks I'm strange talking to you all on the internet! I think it would do him good to see that I'm not the only one - and people and their families can still meet up and have fun despite this crappy illness. I have wanted to meet you all for ages so will definitely be there one way or another. I think I would have gone bonkers a long time ago if I hadn't had your shoulders to cry on and the advice you have given. Promise I will be feeling more positive by then!
In the meantime, seeing professor Wilson on 30 March. (I call him Professor Pig!) He probably won't listent to anything I say and the nurses have already booked me in with them in June (just in case). If you google Prof A G Wilson, you will see he is quite a big wig in academic circles. Pity he has absolutely no interpersonal skills
Hope to see you soon.
Julie xxxx
